ALS – Lyme disease story
- From: “georgia” <jwissmille@xxxxxxx>
- Date: 14 May 2005 18:20:35 -0700
Stronger Every Day
With an iron will and an unconventional new treatment, Charlies Smith
is going toe-to-toe with ALS
06:26 PM CDT on Saturday, April 30, 2005
By BRYAN WOOLLEY / The Dalles Morning News
MULLIN, Texas – Charlie Smith is thinking about what he might do with
the rest of his life.
“I don’t want to go back to trucking,” he says. “I want to be home
every night to see my babies.”
There are ranches for troubled boys in the Central Texas hills where
Charlie lives. Maybe he could work at one of those, he says, or some
place like them. Maybe he could be some kind of counselor.
“I’d like to tell those kids my story and what I’ve been through,” he
says. “Maybe I could help somebody who’s wanting to give up.”
Talking about the future is a strange new thing for Charlie. He wasn’t
supposed to have one.
In December 2002, doctors at the University of Texas Southwestern
Medical Center at Dallas told him he might have amyotrophic lateral
sclerosis (ALS), often called Lou Gehrig’s disease. It weakens the
body’s muscles and then paralyzes them. It kills its victim, sometimes
slowly, sometimes quickly, but always. In June 2003, the doctors
reported that the diagnosis “has been confirmed.”
ALS usually strikes people who are 50 or older. Charlie was only 25.
The Dallas doctors said that he was the youngest ALS victim they had
ever diagnosed and that young ALS victims usually die faster than older
ones. The doctors predicted three to six months for Charlie, maybe a
year. STORY CONTINUES ~
I have included a snapshot of my sister in law Hazel with myself standing by the Lime Tree.. Hazel has very painful feet & each step can be quiet unbearable, still she soldiers on, with the help of my brother Harold who promised, in front of witnesses to be her life partner- back in 1970- which he has..
They have followed advice and kept their bodies slim so there cannot be a blame on the weight of a body, just blame ‘peripheral neuropathy’ the tag doctors give her complaint. With further reading I have found a connection in some cases to Lyme’s Disease. Much is written on Lyme’s Disease, and lucky Australians (or is it private health patients are lucky here) we do not get fobbed off with ‘ there is no such thing in Australia! or do we??)
According to www.ninds.nih.gov/ fact sheet on the topic 2005 version I printed out for my own use, why were my feet sore, why did I have to pick up my foot in my hand and lift it a little higher .. rather than voluntary lifting unaided?? I have the paper here dated 1/28/2008 – they do mention the neuropathy can be a symptom of another disorder. ‘ More than 100 types of peripheral neuropathy can be identified, each with its own characteristic set of symptoms, pattern of development, and prognosis.’
Me with my eye operations, I thought perhaps the antithesis used in 3 operations may have worsened my condition, ~ sure has not helped & thinking about it, it all affects the nervous system. That said, my children notice my walk, lack of direction ~ all of which I am blaming on ability only to see out of one eye.
I am leaving this here, not wishing to bore the reader, and the day is young, I with to enjoy it while I still have the ability to enjoy life..
Brisbane River Eagle Street approach, BRISBANE QLD AUSTRALIA – taken when we made a flying visit to see my optomologist for post op check up..